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  • worried about my dad

    He has parkinsons and i think he is getting worse, he has deteriorated so fast over the past year since his diagnosis, its breaking my heart and i cant stop crying .

    His sister died yesterday of cancer and when i went to see him this morning he never seemed upset about it, i wonder if he understands what has happened . My mum said he cried yesterday , but today it is as if nothing has happened .

    Now i keep remembering how my dad used to be and how he is still my hero , i just keep remembering the songs he used to sing to me when i was a little girl, but it feels like i have lost him
    _______________________________________




  • #2
    Re: worried about my dad

    Understand how you feel S2M as my nan died of this, it is heartbreaking knowing their is nothing that can be done to reverse this terrible disease having family and friends around him as much as possible as well as ensure he takes his meds will help to slow the process.

    Not much comfort at this time I know but I wish him and you well.

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    • #3
      Re: worried about my dad

      I'm am sorry S2M and thinking of you both too
      "If wishes were horses, beggars would ride"

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      • #4
        Re: worried about my dad

        Originally posted by IF View Post
        I'm am sorry S2M and thinking of you both too
        thank you just after posting this because i felt so down i found a report for a new break through which has been tested in humans and the treatment actually stops the progression of the disease and also treats symptoms, so this has cheered me up a bit.
        _______________________________________



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        • #5
          Re: worried about my dad

          Originally posted by pompeyfaith View Post
          Understand how you feel S2M as my nan died of this, it is heartbreaking knowing their is nothing that can be done to reverse this terrible disease having family and friends around him as much as possible as well as ensure he takes his meds will help to slow the process.

          Not much comfort at this time I know but I wish him and you well.
          thank you, i just saying i found a report about a new breakthrough

          http://www.emcell.com/en/list_of_dis.../1559/1659.htm

          there is always hope it seems .
          _______________________________________



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          • #6
            Re: worried about my dad

            Hi S2M, Regards to you and yours, So sorry to hear about your Dad. My Old Boss Lord Hooray had Parkinsons.
            I was one of his primary Carers so I can empathise with you as it is a horrible condition.

            About 5 years ago one of the specialist Lord H went to see told him they were only years away from a breakthrough. So Not wanting to put out any false hope, maybe things are much closer to if not a cure a solution that will significantly slow down the condition.

            It's painful when it's one of your own as I know well. It makes it hard to be practical and objective. But if you can take comfort in the fact that you are not alone, as many of us here have similar worries about our own families.

            Like they say, a trouble shared is a trouble halved. (well something like that)
            Mother Nature Don't Draw Straight lines, We are Broken Moulds in Life's Grand Design, We look a Mess but we're doing fine,
            Life Long Card Carrying Member Of the Union of Different Kinds.

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            • #7
              Re: worried about my dad

              I am so sorry to read this S2M, as a daddy's girl myself it would be my worst nightmare. I hope you can get him some treatment to slow this dreadful disease down.

              Jane x

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              • #8
                Re: worried about my dad

                I'm so sorry S2M, to hear your sad news of your fathers illness and of the death of your aunt. Big hugs to you x

                I do hope that he can receive treatment that will help slow down and, fingers crossed, improve his situation.

                You may feel as if you've lost him, however, it is wonderful that he hasn't lost you and whilst I no little about the disease, it must provide some comfort to him knowing his loving family is there for him.

                I don't know much about your personal circumstances, however there are charities such as Parkinsons UK which can provide support networks, and if you have time, you can volunteer for fundraising to help towards research. Some people can find it helpful knowing that they are doing a little bit to help towards improving the chances of cures/treatments being found.

                We are all here for you when you need support xxx
                If happy little bluebirds fly, beyond the rainbow, why, oh why can't I?

                sigpic

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                • #9
                  Re: worried about my dad

                  I just want to echo what everyone else has said S2M, and sending you big hugs.xxxxx
                  Shine on you crazy diamond..

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                  • #10
                    Re: worried about my dad

                    Sending hugs to you S2M.

                    My friend had this terrible disease so I know how much it must be hurting you to see him like this. x
                    Let your smile change the world but don't let the world change your smile


                    I'm an official AAD Moderator and also a volunteer, here to help make the forum run smoothly. Any views or opinions are mine and not the official line of AAD. Similarly, any advice I have offered you is done so on an informal basis, without prejudice or liability. If in doubt seek advice from a qualified insured professional - Find a Solicitor or go to the National Probono Centre.

                    If you spot an abusive or libellous post then please report it by Clicking Here. If you need to contact me, for instance if I've issued you a warning, moved, edited or deleted your post, please send me a message by clicking my username.

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                    • #11
                      Re: worried about my dad

                      Hi Hun,
                      It is a nasty disease but thankfully much better diagnosed and managed than it was years ago when I first started nursing.
                      It's important to get the balance of meds right so don't hesitate to get him back to the doctor if you feel he's getting worse either physically or mentally.

                      Put simply, too much medication for the rigidity can affect him mentally, even to causing hallucinations, and vice versa can increase rigidity.
                      Typically they do look to lack emotion because of facial muscle involvement, and thought processes are slower and altered, but doesn't necessarily mean he's not feeling it.
                      You can help him by talking to him, getting him to reminisce, going through family albums with him, playing music he likes etc etc. Keep him as active as he can be. His brain may struggle to make the connections, but you can do it for him.
                      It all helps to keep him with you mentally. And helps you to cope and remember who he is, still your Dad. xxx
                      Last edited by Undercover Elsa; 23rd February 2013, 13:57.

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                      • #12
                        Re: worried about my dad

                        So So sorry for you and your family

                        This site is for soooo much more than sending template letters - I think we all agree on that!

                        Take care, Look after yourself so that you are able to look after your family

                        As others have said, A problem shared...........

                        You have my details ect - You know where I am

                        Thinking of you during this dificult time
                        I'm an official AAD Moderator and also a volunteer, here to help make the forum run smoothly. Any views or opinions are mine and not the official line of AAD. Similarly, any advice I have offered you is done so on an informal basis, without prejudice or liability. If in doubt seek advice from a qualified insured professional - Find a Solicitor or go to the National Probono Centre.

                        If you spot an abusive or libellous post then please report it by Clicking Here. If you need to contact me, for instance if I've issued you a warning, moved, edited or deleted your post, please send me a message by clicking my username.

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                        • #13
                          Re: worried about my dad

                          In just wanted to say i feel for you S2M , it must be dreadful....i dont know much about parkinsons to be honest , but we are live in carers for my wifes gran (surrogate mum as her own mum passed years back when she was a child) and she has dementia , which is getting worse daily it seems , she fought to be OK for christmas with us and the kids , but since then , its been all downhill , i dont know if dementia and parkinsons are similar (sorry for my ignorance) but both are heartbreaking so my thoughts go out to you

                          Dan

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                          • #14
                            Re: worried about my dad

                            Sorry to read this. Thoughts with you at this time.
                            When Gold isn't enough, there is SA Gold! New to the forum and find the UE route a bit scary? Take a look at my diary here and judge for yourself. I am now saving the money each month that was making little difference to the balance and not a bit of difference to my credit file as a result of finding AAD.



                            I'm an official AAD Moderator and also a volunteer, here to help make the forum run smoothly. Any views or opinions are mine and not the official line of AAD. Similarly, any advice I have offered you is done so on an informal basis, without prejudice or liability. If in doubt seek advice from a qualified insured professional - Find a Solicitor or go to the National Probono Centre.

                            If you spot an abusive or libellous post then please report it by Clicking Here. If you need to contact me, for instance if I've issued you a warning, moved, edited or deleted your post, please send me a message by clicking my username.

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                            • #15
                              Re: worried about my dad

                              Hi S2M, sorry to hear about the passing of your Aunt, and also the illness your Dad is suffering.
                              I used to work as a Home care in my village and had a couple of people with Parkinsons,I seemed to be more of a sounding post for their Partners than a carer , I found it best to keep cheerfull and smile a lot. don't mean that to sound flippent and hurtfull, just that they seemed to look forward to you going back again if you kept the mood joking and funny.If the mood got a bit dark i used to ask about the people in pictures around the house, one bloke told me i was a nosey bu**er, i said yes, but who is it and when was it taken?. couldn't stop him laughing, thought we were going to get the oxegen out to help him breath. the next day he knew I was coming and had another picture ready for me,( I miss him)

                              I actually got reported by one old lady for being to jolly before 9 am
                              I'm an official AAD Moderator and also a volunteer, here to help make the forum run smoothly. Any views or opinions are mine and not the official line of AAD. Similarly, any advice I have offered you is done so on an informal basis, without prejudice or liability. If in doubt seek advice from a qualified insured professional - Find a Solicitor or go to the National Probono Centre.

                              If you spot an abusive or libellous post then please report it by Clicking Here. If you need to contact me, for instance if I've issued you a warning, moved, edited or deleted your post, please send me a message by clicking my username.

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