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  • #1

    Please help and sign petition For dialysis to remain a prescribed service on the NHS in 2015

    Please help and sign petition for dialysis to remain a prescribed on the NHS 2015

    https://submissions.epetitions.direc...etitions/72236

    I am a kidney patient myself and thankfully not got to that stage for dialysis as yet, but if the unfortunate did happen myself and others alike will not be able to afford to go private, with that so many lives could be lost, thank you for your support, below further details, again thank you.......

    Responsible department: Department of Health

    Kidney disease charities were "stunned" to have been told this week (20 Nov '14) dialysis will no longer be a prescribed service on the English NHS from next year.
    Care for dialysis patients should not be the responsibility of CCGs (clinical commissioning groups). Dialysis is a specialist service that should be managed by renal experts.
    We want dialysis to remain a prescribed service on the NHS.
    Tags: 2015, charities, complaints, date, details, family, football, help, holiday, life, list, lost, nhs, patients, petition, pressure, private, resources, spain, stay, support, tests, thank you, tps, working
  • #2
    Re: Please help and sign petition For dialysis to remain a prescribed service on the NHS in 2015

    Signed
    Let your smile change the world but don't let the world change your smile

    I'm an official AAD Moderator and also a volunteer, here to help make the forum run smoothly. Any views or opinions are mine and not the official line of AAD. Similarly, any advice I have offered you is done so on an informal basis, without prejudice or liability. If in doubt seek advice from a qualified insured professional - Find a Solicitor or go to the National Probono Centre.

    If you spot an abusive or libellous post then please report it by Clicking Here. If you need to contact me, for instance if I've issued you a warning, moved, edited or deleted your post, please send me a message by clicking my username.

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    • #3
      Re: Please help and sign petition For dialysis to remain a prescribed service on the NHS in 2015

      Thank you my lovely, hope your keeping well x x

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      • #4
        Re: Please help and sign petition For dialysis to remain a prescribed service on the NHS in 2015

        Signed

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        • #5
          Re: Please help and sign petition For dialysis to remain a prescribed service on the NHS in 2015

          Thank you very much Fred x

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          • #6
            Re: Please help and sign petition For dialysis to remain a prescribed service on the NHS in 2015

            Signed

            My friend was on dialysis for a few months, luckily his brother gave him a kidney in March, I'm happy to report that both are doing very well.

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            • #7
              Re: Please help and sign petition For dialysis to remain a prescribed service on the NHS in 2015

              Thank you Sapphire.... that is brill news. One of my oldest mates is due to give one of her kidney's to her 28 year old daughter, they are just waiting for the go ahead date now, so far so good...x x

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              • #8
                Re: Please help and sign petition For dialysis to remain a prescribed service on the NHS in 2015

                Happy to sign, honey!
                Hope you're OK?

                Elsa x

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                • #9
                  Re: Please help and sign petition For dialysis to remain a prescribed service on the NHS in 2015

                  Thanks for putting this on here Di. it is a worrying development for those of us on dialysis.

                  Peter

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                  • #10
                    Re: Please help and sign petition For dialysis to remain a prescribed service on the NHS in 2015

                    Thank you everyone. x x

                    Not doing too bad at the moment thankfully, I do get more tireder than usual but feel so grateful, as there are lots worse than me.

                    Your welcome GT, how are you doing? x x

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                    • #11
                      Re: Please help and sign petition For dialysis to remain a prescribed service on the NHS in 2015

                      Not sure how this helps, but about 18 months ago, my nephew was in Spain working and has an infection which knocked out his kidneys.

                      After some time in ITU and then on dialysis he was put on the transplant list. The Spanish health service supplies their patients with home dialysis kits, and even arranged for him to go on holiday to Portugal supplying him with a portable machine and arranging supplies in Portugal for his 2 week holiday. He was expecting to wait for about 18 months for a transplant, as in Spain you opt out rather than in, and they have many road fatalities. However, as he was on dialysis for 8 hours overnight every night, he could keep on working, although limited to 1l of liquids a day. He lost 3 of his 10 stones.

                      The family were tested and his mother was a match and she went over to Spain and gave him a kidney. He is now running around playing football and enjoying life. Unfortunately transplants last only 10 years or so on average. So his future is pondered.

                      The NHS is different and the steps towards dialysis and transplant are more difficult. Certain ethnic groups are more prone to kidney disease and to congenital kidney complaints than others and the the resources are finite, which make the decisions even more difficult in some areas. I doubt my nephew would be alive had he been in some areas of the UK given that his kidney failure was from a wisdom tooth infection a month earlier, and only diagnosed in A&E when he went suddenly blind, as he would would not have got onto any list.

                      Think about signing up to the donors' lists as well as signing the petition.
                      Last edited by julian; 27 November 2014, 13:24. Reason: typos

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                      • #12
                        Re: Please help and sign petition For dialysis to remain a prescribed service on the NHS in 2015

                        Signed x
                        I'm an official AAD Moderator and also a volunteer, here to help make the forum run smoothly. Any views or opinions are mine and not the official line of AAD. Similarly, any advice I have offered you is done so on an informal basis, without prejudice or liability. If in doubt seek advice from a qualified insured professional - Find a Solicitor or go to the National Probono Centre.

                        If you spot an abusive or libellous post then please report it by Clicking Here. If you need to contact me, for instance if I've issued you a warning, moved, edited or deleted your post, please send me a message by clicking my username.

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                        • #13
                          Re: Please help and sign petition For dialysis to remain a prescribed service on the NHS in 2015

                          Originally posted by di30 View Post
                          Thank you everyone. x x

                          Not doing too bad at the moment thankfully, I do get more tireder than usual but feel so grateful, as there are lots worse than me.

                          Your welcome GT, how are you doing? x x

                          SO so Di. A very long story of transplants and dialysis over the last thirty years, i would not wish to bore anyone with it

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                          • #14
                            Re: Please help and sign petition For dialysis to remain a prescribed service on the NHS in 2015

                            Signed
                            I'm an official AAD Moderator and also a volunteer, here to help make the forum run smoothly. Any views or opinions are mine and not the official line of AAD. Similarly, any advice I have offered you is done so on an informal basis, without prejudice or liability. If in doubt seek advice from a qualified insured professional - Find a Solicitor or go to the National Probono Centre.

                            If you spot an abusive or libellous post then please report it by Clicking Here. If you need to contact me, for instance if I've issued you a warning, moved, edited or deleted your post, please send me a message by clicking my username.

                            Comment

                            • #15
                              Re: Please help and sign petition For dialysis to remain a prescribed service on the NHS in 2015

                              Signed
                              I'm an official AAD Moderator and also a volunteer, here to help make the forum run smoothly. Any views or opinions are mine and not the official line of AAD. Similarly, any advice I have offered you is done so on an informal basis, without prejudice or liability. If in doubt seek advice from a qualified insured professional - Find a Solicitor or go to the National Probono Centre.

                              If you spot an abusive or libellous post then please report it by Clicking Here. If you need to contact me, for instance if I've issued you a warning, moved, edited or deleted your post, please send me a message by clicking my username.

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