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  • #61
    Re: Lupus.

    Thanks Pixie and S2M. Really appreciate these remarks.

    Still scratching like mad - and I know I should leave the itching alone, but just can't help it!
    I'm an official AAD Moderator and also a volunteer, here to help make the forum run smoothly. Any views or opinions are mine and not the official line of AAD. Similarly, any advice I have offered you is done so on an informal basis, without prejudice or liability. If in doubt seek advice from a qualified insured professional - Find a Solicitor or go to the National Probono Centre.

    If you spot an abusive or libellous post then please report it by Clicking Here. If you need to contact me, for instance if I've issued you a warning, moved, edited or deleted your post, please send me a message by clicking my username.

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    • #62
      Re: Lupus.

      Can the doctor give you anything to help with the itching?
      Let your smile change the world but don't let the world change your smile

      I'm an official AAD Moderator and also a volunteer, here to help make the forum run smoothly. Any views or opinions are mine and not the official line of AAD. Similarly, any advice I have offered you is done so on an informal basis, without prejudice or liability. If in doubt seek advice from a qualified insured professional - Find a Solicitor or go to the National Probono Centre.

      If you spot an abusive or libellous post then please report it by Clicking Here. If you need to contact me, for instance if I've issued you a warning, moved, edited or deleted your post, please send me a message by clicking my username.

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      • #63
        Re: Lupus.

        Originally posted by Pixie View Post
        Can the doctor give you anything to help with the itching?
        I do have some cream - am on my fourth tube! - but the effect wears off after a couple of hours.

        And the rash, like the joint pain, seems to wander all over my body. Apparently this is quite a common symptom of the condition.
        I'm an official AAD Moderator and also a volunteer, here to help make the forum run smoothly. Any views or opinions are mine and not the official line of AAD. Similarly, any advice I have offered you is done so on an informal basis, without prejudice or liability. If in doubt seek advice from a qualified insured professional - Find a Solicitor or go to the National Probono Centre.

        If you spot an abusive or libellous post then please report it by Clicking Here. If you need to contact me, for instance if I've issued you a warning, moved, edited or deleted your post, please send me a message by clicking my username.

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        • #64
          Re: Lupus.

          Finally received my hospital appointment - for 22nd November! Obviously they don't think I am in desperate need.

          Joints feel a bit better today (think it may be due to the warmer and drier weather?) but the itching is still driving me mad! Am going back to see if my GP can give me something in the interim.
          I'm an official AAD Moderator and also a volunteer, here to help make the forum run smoothly. Any views or opinions are mine and not the official line of AAD. Similarly, any advice I have offered you is done so on an informal basis, without prejudice or liability. If in doubt seek advice from a qualified insured professional - Find a Solicitor or go to the National Probono Centre.

          If you spot an abusive or libellous post then please report it by Clicking Here. If you need to contact me, for instance if I've issued you a warning, moved, edited or deleted your post, please send me a message by clicking my username.

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          • #65
            Re: Lupus.

            Originally posted by Phoenix View Post
            Finally received my hospital appointment - for 22nd November! Obviously they don't think I am in desperate need.

            Joints feel a bit better today (think it may be due to the warmer and drier weather?) but the itching is still driving me mad! Am going back to see if my GP can give me something in the interim.
            might be a daft question, but is it menopause? i started mine when i was 36 and completed it by 47 , i had aching joints (still do) and itchy skin , feeling crashed and couldn't sleep (still can't sleep) . Just wondered like

            thought this link might give a different view

            http://www.womentowomen.com/inflamma...menopause.aspx
            Last edited by Spent2much; 22 September 2013, 18:02.
            _______________________________________



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            • #66
              Re: Lupus.

              Thanks S2M. Am quite flattered by that suggestion - I am nearly 69 and went through the menopause about twenty years ago!

              However, I am on quite a new drug for my osteoporosis and am wondering if it might be a side effect of that. Will pester my GP again tomorrow - bet they will be pleased when I get treated by the hospital.

              And am convinced that the joint thing is weather-related - so am hoping we don't get much rain in the next few weeks!
              I'm an official AAD Moderator and also a volunteer, here to help make the forum run smoothly. Any views or opinions are mine and not the official line of AAD. Similarly, any advice I have offered you is done so on an informal basis, without prejudice or liability. If in doubt seek advice from a qualified insured professional - Find a Solicitor or go to the National Probono Centre.

              If you spot an abusive or libellous post then please report it by Clicking Here. If you need to contact me, for instance if I've issued you a warning, moved, edited or deleted your post, please send me a message by clicking my username.

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              • #67
                Re: Lupus.

                Originally posted by Phoenix View Post
                Finally received my hospital appointment - for 22nd November! Obviously they don't think I am in desperate need.

                Joints feel a bit better today (think it may be due to the warmer and drier weather?) but the itching is still driving me mad! Am going back to see if my GP can give me something in the interim.
                Aww bless you, I am sorry the appointment is a month away

                Sending another hug
                "If wishes were horses, beggars would ride"

                Comment

                • #68
                  Re: Lupus.

                  Originally posted by Phoenix View Post
                  Thanks S2M. Am quite flattered by that suggestion - I am nearly 69 and went through the menopause about twenty years ago!

                  However, I am on quite a new drug for my osteoporosis and am wondering if it might be a side effect of that. Will pester my GP again tomorrow - bet they will be pleased when I get treated by the hospital.

                  And am convinced that the joint thing is weather-related - so am hoping we don't get much rain in the next few weeks!

                  well i really hope you get it sorted out and it isn't Lupus xx
                  _______________________________________



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                  • #69
                    Re: Lupus.

                    Thanks for the kind words, IF and S2M. Much appreciated.

                    Sending hugs backxxx
                    I'm an official AAD Moderator and also a volunteer, here to help make the forum run smoothly. Any views or opinions are mine and not the official line of AAD. Similarly, any advice I have offered you is done so on an informal basis, without prejudice or liability. If in doubt seek advice from a qualified insured professional - Find a Solicitor or go to the National Probono Centre.

                    If you spot an abusive or libellous post then please report it by Clicking Here. If you need to contact me, for instance if I've issued you a warning, moved, edited or deleted your post, please send me a message by clicking my username.

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                    • #70
                      Re: Lupus.

                      Sending more hugs Phee

                      I have aching joints as a side effect of my medication so I can empathise.
                      Let your smile change the world but don't let the world change your smile

                      I'm an official AAD Moderator and also a volunteer, here to help make the forum run smoothly. Any views or opinions are mine and not the official line of AAD. Similarly, any advice I have offered you is done so on an informal basis, without prejudice or liability. If in doubt seek advice from a qualified insured professional - Find a Solicitor or go to the National Probono Centre.

                      If you spot an abusive or libellous post then please report it by Clicking Here. If you need to contact me, for instance if I've issued you a warning, moved, edited or deleted your post, please send me a message by clicking my username.

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                      • #71
                        Re: Lupus.

                        Crikey! This all sounds very familiar. I have been suffering from aching joints, painful knees, terrible neck and shoulder pains with migraine type headaches. The neck pains I have had for a few years, was treated for cervical spondylitis and a trapped nerve i even had surgery (denervation) where they had to cut the nerves in my neck to try and ease the pain. At that time about 6 years ago I thought I was losing my mind. The pain was unbearable tingling in my hands and frequent vomiting. It got so bad I had facial pain and was convinced it was something to do with my teeth where I had had a root canal filling. I begged the dentist to take out 3 teeth convinced they were to blame for the intense pain. The doctors believed It was wear and tear from years of lifting (nursing)

                        when I moved home and got a new GP he sent me to the rheumatologist for test to rule out lupus. I also had and still have intense itching which drives me spare! It don't have lupus but have been told I have fibromyalgia, this seems to cover just about anything and there's no specific treatment. It does seem to fluctuate, some days I can hardly walk for pain and stiffness and could sleep for ever, other times and don't feel too bad. I tell myself that it's just age, I was 61 on Friday and I can't afford to be ill as my husband has severe mobility problems and needs me to help him.

                        Isn't life wonderful! Oh and I now have arthritis in my big toe joint making wearing shoes agony.

                        They shoot horses don't the? LOL

                        good luck and hugs to all fellow sufferers x

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                        • #72
                          Re: Lupus.

                          Thanks for the kind words, Pixie.

                          And, Maggie, your condition sounds so much worse than mine. I think fibromyalgia is a diagnosis used when they don't really have a clue what is wrong. My joint pain takes it in turns to affect parts of my body - the fingers are the worst because it makes typing difficult. Mind you, I am not keen on the feet pains either, as walking is quite necessary!

                          Rang my GP today but he said I should wait to see the specialist. So, only eight more weeks to go. Half of me wonders whether I it may clear up before then.

                          And am going to try good, old-fashioned calomine lotion for the rash. Think I have built up resistance to the steroid cream!

                          The trials and tribulations of getting old - but it does beat the alternative!
                          I'm an official AAD Moderator and also a volunteer, here to help make the forum run smoothly. Any views or opinions are mine and not the official line of AAD. Similarly, any advice I have offered you is done so on an informal basis, without prejudice or liability. If in doubt seek advice from a qualified insured professional - Find a Solicitor or go to the National Probono Centre.

                          If you spot an abusive or libellous post then please report it by Clicking Here. If you need to contact me, for instance if I've issued you a warning, moved, edited or deleted your post, please send me a message by clicking my username.

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                          • #73
                            Re: Lupus.

                            Originally posted by Phoenix View Post
                            Thanks for the kind words, Pixie.

                            And, Maggie, your condition sounds so much worse than mine. I think fibromyalgia is a diagnosis used when they don't really have a clue what is wrong. My joint pain takes it in turns to affect parts of my body - the fingers are the worst because it makes typing difficult. Mind you, I am not keen on the feet pains either, as walking is quite necessary!

                            Rang my GP today but he said I should wait to see the specialist. So, only eight more weeks to go. Half of me wonders whether I it may clear up before then.

                            And am going to try good, old-fashioned calomine lotion for the rash. Think I have built up resistance to the steroid cream!

                            The trials and tribulations of getting old - but it does beat the alternative!
                            I think you are spot on there. Fibromyalgia covers a multitude of symptoms so its easier to give you that diagnosis.

                            Hah yes getting old is not all its cracked up to be, now I have the time to do things I don't have the energy.

                            Comment

                            • #74
                              Re: Lupus.

                              Originally posted by Maggie View Post
                              Hah yes getting old is not all its cracked up to be, now I have the time to do things I don't have the energy.
                              You are so right! I can identify 110% with that.

                              Often think about doing stuff but what the mind thinks is possible becomes physically impossible!
                              I'm an official AAD Moderator and also a volunteer, here to help make the forum run smoothly. Any views or opinions are mine and not the official line of AAD. Similarly, any advice I have offered you is done so on an informal basis, without prejudice or liability. If in doubt seek advice from a qualified insured professional - Find a Solicitor or go to the National Probono Centre.

                              If you spot an abusive or libellous post then please report it by Clicking Here. If you need to contact me, for instance if I've issued you a warning, moved, edited or deleted your post, please send me a message by clicking my username.

                              Comment

                              • #75
                                Re: Lupus.

                                I find if I overdo things I pay for it for days later. I must admit it does get me down, always seem to have pain somewhere or another.

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