Proposal to replace DLA (PIP)/Autism/NAS

[PriorityOne]

Re: Proposal to replace DLA (PIP)/Autism/NAS

Hi hon

Blimey, sorry you've had to go through this ordeal as well.
It is very stressful isn't it?

Glad you finally won your case anyway, well done.

Yes I know what your saying, and my son was just one years old when he was diagnosed with asthma and still suffering now, so I guess as we had to apply all the medical conditions on the form - was the reason perhaps the guy asked the questions on that matter.

But he could also see that we did manage his asthma, even though my son does often need help with taking them and reminding as such, but then we did not feel that was relevant to why we were making a claim for the DLA for my son.
For this reason, we feel that was why they ended up awarding my son with low rates on both benefits, which I had supersessed within the month and they therefore highered this to high rate.

I was shocked though that not one question was put forward in regards of the autism and how it affected my son and also us "the family" of our full time care both day and night.

Thanks Di.... my experience was a long time ago now and over the years, my daughter's condition eased. At the time though, it was a nightmare because she was a little girl and didn't recognise when she needed the inhalers.... She needed them regularly during the night as well.

Although you say that you managed the asthma, a "normal" child (DLA definition) wouldn't need that level of care from a parent/carer. My friend is in a similar situation in that she takes the level of care that her daughter needs for granted when in fact, it is far higher. As a good parent, you do the caring anyway.... do you know what I mean?

What you see as the most important reason for claiming for your son (autism) may not be as easy to assess in the legal sense as something like asthma. The reason for that is because an assessment for autism relies upon psychological assessment and something like asthma doesn't..... so I do think it's worth stressing all of his needs when it comes to re-claiming because it should strengthen your case.

:-)

[di30]

Re: Proposal to replace DLA (PIP)/Autism/NAS

Thanks Di.... my experience was a long time ago now and over the years, my daughter's condition eased. At the time though, it was a nightmare because she was a little girl and didn't recognise when she needed the inhalers.... She needed them regularly during the night as well.

Although you say that you managed the asthma, a "normal" child (DLA definition) wouldn't need that level of care from a parent/carer. My friend is in a similar situation in that she takes the level of care that her daughter needs for granted when in fact, it is far higher. As a good parent, you do the caring anyway.... do you know what I mean?

What you see as the most important reason for claiming for your son (autism) may not be as easy to assess in the legal sense as something like asthma. The reason for that is because an assessment for autism relies upon psychological assessment and something like asthma doesn't..... so I do think it's worth stressing all of his needs when it comes to re-claiming because it should strengthen your case.

:-)

Hi hon

Cheers for that, and yes I do see your point, and when his renewal comes through for next year, I shall also remember to take that into account as well.
Thank you for the tips honey, I appreciate it very much.

I suppose I just seen it as we (us parents) managing the asthma and had it under control, but see what you mean, it's still a matter of constant care and control as such, despite his other conditions.

Thank you x

[garlok]

Re: Proposal to replace DLA (PIP)/Autism/NAS

It doesn't matter what condition you have, and worse these cretins don't care. Following my run in with the NHS and the death house that was and is Stafford Hospital, I was told that I had to apply for DLA.

Well it is just an excuse to insult and denigrate people who are ill and under the signature of the faceless (coward) "The Decision Maker" that because the NHS had not amputated BOTH legs at least below the knees then I had no entitlement to any benefit at all. When I suggested to the department that I be allowed access to "the Decision Maker" so that some nasty people I knew could go round with baseball bats and top his pain level to the same as I was experiencing every day they refused of course to even give me the name of the detritus.

I swore at that point that I would never pay another penny into the State that I could not get back in some way or another. That year I had paid £8500 in National Insurance alone and I was told the State and the NHS had consigned me to the scrap heap as there was no money to pay for any proper treatment for me.

Roll on the revolution comrades and make no mistake I am not squeamish about executing public servants who behave in this way.

regards
Garlok